Long Weekend

This long weekend was SO needed after last week. The girls are doing amazing after surgery. Harper had such a minor surgery that she was back to normal almost immediately. Addi is starting to feel the pain more, but still won’t slow down. I wish she would so that I wasn’t so on edge about the possibility of her stitches busting.


Scott goes to the church to get some work done on Saturday mornings. The girls and I were all losing our minds. I started packing a cooler– determined to go ANYWHERE. It was finally sunny and we were getting out! When Scott got home, we decided that the zoo would be our destination.

The girls had a lot of fun. It was a hot day, but we always pack loads of water. Sunscreen and hats are not optional on the kids. The animals were surprisingly active considering how hot it was.


Somewhere along the way, Scott realized that Harper’s glasses were gone. She throws everything from her stroller- shoes, soppy cups, snacks, you name it. We ALWAYS hear and see things fall and pick them up. She throws those darn glasses off during every walk we go on. Scott went to retrace our steps while I took the girls to play on the playground. He filled out a form at the lost and found. We all met back up and retraced steps again.. Nothing. They are still gone. 

Sunday was a typical Sunday. We had family day, so the big girls say with me during church while Scott preached. They popped popcorn for everyone to eat, which probably really helped with keeping all of the kids quiet. 😉


Chloe lost a tooth on Wednesday, and another on Sunday! She’s going to have to eat soup soon!!

Yesterday, we made it a point to teach our children about Memorial Day. We are so THANKFUL for the men and women who have sacrificed their lives to keep us free. 

Scott grilled both of our meals (so good) and we went for a short walk. His birthday is this Saturday, but we will be out of town. So, we had extra celebrations!! 


All in all, it was a great weekend to help gear us up for this crazy week! We have follow up appointments, speech therapy, ear plugs that need made, new glasses to order, and lots of packing/cleaning to do before our “vacation”. 

I hope that your weekend was full of fun, and remembrance for those who have gone before.

Survival

Two of my kids had surgery on Wednesday. I made it through the whole day without crying. I fought tears back several times.. Especially when they carried a crying Harper away.. And again when I heard Addi wake up, but was not allowed to see her yet. I almost threw up.

Here we are, alive and doing well. I feel like I numbed myself to it all, and now I become overwhelmed by emotions. I nearly cry when I think about how thankful I am. They made it through. They woke up. They are back to their energetic and silly selves!! 

Truly, I am so grateful. 

 Addi and Harper are BFFs. I am glad they got to be there for each other. You could see the concern all over their faces for each other.

Goodness, I just love them. Hopefully soon my mind will slow down and I will write more coherent thoughts. 

For now, everyone is doing great and we are waiting to find out the results. 

Thank you for praying for my babies! ❤️

I Am Back

I just figured out that I can write posts from my phone! I know, I am so tech savvy. 

Harper has her adorable new glasses! It’s strange to see her without them now if she takes them off. 

We have been spending a lot of time exploring the area. There were some warm and sunny days that we took advantage of. We are now stuck in a loooong stretch of rainy days. Womp. No one can get sick. We have surgery in two days for Addi and Harper, so I am being very cautious. No rescheduling allowed!

Here are some pictures to catch you up on our lives!  There is a massive walking path that goes all through town. We enjoyed getting out and walking/running some.

We also have been making trips to the library, park, and hiking at one of the state parks.

I cannot begin to describe how wonderful it has been to get outdoors again. The girls kept saying how they LOVE BEING IN THE NATURE!

Childhood. We are celebrating childhood! 

Reflecting

May 8th brings so many memories for me.

I have written about it here and here before. Probably many other times, also. I am forever changed.

May 8, 2014 started off like any other day. Our basement was under construction. Harper’s bedroom and a second bathroom were being built. We were nearing the end of the project. Two wonderful men had been working tirelessly- 5 days a week from 9-5 (or earlier). Their only pay was lunch with my crazy family. Truly, they are heroes in my book. They always cleaned up after themselves. They made my girls laugh and feel special. They made me laugh. Never has a construction project been so fun for the “homeowner”.

Anyway, I took the girls outside this day after nap time. It was sunny and beautiful. It was a little on the hot side, but only because I was 30 weeks pregnant and would have been hot in 30 degree weather. I was playing with the girls. They were swinging and picking “flowers” for me. Scott came home to mow the huge piece of land that was the church property. I was standing next to the kiddie slide and Addi started playing on it.

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I started to feel.. off. I had these weird spells all the time; they just became more frequent during pregnancy. I would have this weird sensation wash over me.  Then, my ears would start ringing and I’d feel really hot and dizzy. If it got really bad, I would start to black out. Usually, I would pop right out of it. Sometimes, when I would start to black out, I would literally feel like I was going to die. I really cannot explain it because it sounds so dramatic. But, it was terrifying. This time, I reached the “blacking out” phase and I started truly believing that I was dying. I was praying that God would spare me. Please, God. Please!

The next thing that I remember was a paramedic in my face asking me if I knew where I was. I apparently did not know, but kept claiming that I did. I couldn’t ever answer him. He finally asked if I knew my name. Thankfully, I was able to answer that question.  The two paramedics started loading me onto a gurney and hauled me off to the hospital.  I saw my girls playing. I answered all of the paramedic’s questions. I had an IV stuck into my hand because I was so dehydrated that finding a vein was difficult. They asked me if I felt the baby moving. It finally hit me how bad this all could be. Thankfully, I think Harper heard him, because she gave me a big thump and reassured me that she was ok.

It appeared that I had a seizure, but they were unsure since I didn’t have any known history of seizures.  No one was believing what Scott saw; the doctor’s, my parents.. no one. “It was probably just dehydration.” Scott kept saying over and over to me “I know what I saw.” I felt so bad for him. I cannot imagine what he saw, and how he kept his head on straight through it all. I am so blessed to have him..

10003952_552420688710_6551221859734009889_n (1)I ended up BEGGING for them to move my IV because it hurt so bad.. if you know me, you know how much I HATE needles! haha! 

They ran every test in the book since they weren’t sure exactly what had happened.

May 9th the results started coming in. The ECHO revealed that I had a Patent Foramen Ovale (PFO), or a hole in between the atria of my heart. It wasn’t the cause, but good to know. Heart Disease took me down as soon as I was born, which is so frustrating to me. The EEG showed that I did, in fact, have a seizure. All of those “spells” that I had been having for YEARS ended up being partial seizures. Answers. Finally answers.

I was no longer allowed to drive for at least the next 6 months. My once-healthy pregnancy was now deemed high-risk and I had to have non-stress tests done twice a week. I had to see my OB once a week. I had to follow up with a cardiologist and neurologist. Did I mention that I was not allowed to drive? All of this crummy news, and the thing that brought me to tears was not being allowed to drive. How was I supposed to get to all of these appointments?! My husband had a job. I had no family around.

God was IN this though. He was SO COMPLETELY in it all. Had Scott not been at home, I would have been laying in my yard unconscious while my girls ran free. We lived on a busy parking lot that people flew through all the time. I was unconscious until after paramedics arrived. I am not sure exactly how long that was, but I think somewhere around 5 minutes. I fell forward, onto my pregnant belly. Had I not been next to the kiddie slide and.. well, slid down it on my stomach.. I could have seriously hurt or killed Harper. Scott’s boss was 100% understanding and allowed Scott to take the time off to drive me to all of those appointments.. all without having him make up the time.

Ironically, my favorite birthday was two days after all of this. My parents hopped into their car and drove up to the hospital. They arrived in the middle of the night. My mom spent a lot of time at home with the girls so that Scott could be with me. He would trade off with her so she could come up. They finally released me on my birthday. I came home to signs and cards made by my mom and the girls. I had a wonderful cake made by them. It just really felt like a celebration. Things could have ended so differently. To come home with only bruises and a healthy baby still in my belly was truly the greatest gift.

Life forever changed that day. I now have an incurable disease that leaves me taking pills every day. Epilepsy has changed me. I can no longer have children, unless God chooses to give me a miracle. I used to never go to the doctor, and now I have frequent visits. If I start to feel at all off, I worry. My girls tell pretty much everyone they meet about how “mommy passed out.” and then I have to explain so that people will stop looking so concerned. However, epilepsy is NOT  a death sentence. My life is not over. I am different, but I am stronger. I have been able to help others because of it. I give God ALL of the glory for his protection of not only myself, but all three of my children.

I don’t know why this all happened. But, I do know that God is good. He is going to use it in ways that I may never know.

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All In

Phew! What a whirlwind of a week!!

On Monday, I was waiting for a phone call about Harper’s glasses. The only problem was that my phone was not working, so I asked them to call Scott. Once I knew they called, we loaded up and went to pick them up. The girls love going to the ophthalmologist’s office. They always give the big girls stickers, and they love to look through and find the best ones.

Tuesday, we went to Springfield, Missouri for a day of fellowship week at Baptist Bible College. We had planned on driving back once it was over on Tuesday, but we were graciously given a hotel room so that we could spend the next morning enjoying it. It was so nice to be back in SpringMo. That is where Scott and I started life as newlyweds, so it feels a lot like going home. We spent Wednesday enjoying the meetings and seeing people we haven’t seen in a long time. They provided childcare also, so we were able to fully immerse ourselves in the messages. It was wonderful. We were in encouraged to be ALL IN in our ministry and what God has called us to.

Today, we took it super easy as we recovered from a lot of time in the car. I am not even sure what we did.. other than Addi coloring on the picnic table, wipes container, and our couch with a blue crayon. Woof. Scott knew that I was DONE by dinner time. We, of course, had lentil tacos for Cinco De Mayo. Then, he took the girls out for a walk so that I could take a shower and have some quiet. He speaks my love language.

Tomorrow is our busy day! Addi and Harper both have appointments with the ENT for very different reasons. Please keep us in your prayers. I have been trying to tell Addi what is going to happen without scaring her. She says “They are going to cut off my mole!!!” in such an excited tone of voice. I’ve tried to tell her that it may hurt some after it’s all done. She said that it was fine, as long as they don’t use a needle or a knife. Uh, we’ll pass that on.. haha!! She has been obsessed with elephants, so we got her a stuffed elephant as a surprise for the day of her procedure. I’m hoping it will help my sensory girl to feel some comfort.

I am feeling very anxious about it all, but I know that God is in control. Every mountain that we have faced has been conquered by God. His hand has been so heavily in every scenario, and it’s so evident. We can see how He has used the best and worst circumstances for His glory, so we are trusting in that.

 

You didn’t think that I would leave you without pictures of Harper’s new accessory, did you?! She is starting to really love them.

 

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Catching Up

Last Thursday was Homeschool Teacher’s Appreciation Day. I didn’t know that was a thing, but Scott looked it up. I was the lucky recipient of some very colorful flowers. 🙂 I love when the girls pick flowers out for me because they are always super bright and cheery.

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You’re welcome, again, for that super grainy cell phone picture. ha! The camera batteries died…  (..and Addi was eating something with ketchup in the background.)

It was grocery shopping weekend, so we spent our weekend at the grocery store. Scott had an lock in, so he spent Saturday half awake and half napping. Exciting, I know. I feel like two days were completely wasted.

Sunday, I got to be in a church service for the first time since Easter. I can’t tell you how exciting it was. I still feel like the new kid in town even though we’ve been here for three months. I have missed so much because of sick kiddos that I don’t know a whole lot of names. We are in such a great church full of really great people. I just wish everyone could wear name tags. 😉

We realized that we had not done anything fun, so Sunday after Harper’s nap, we went to the park. There is a park in town that has a huge canopy over the playground and we have been dying to check it out. This town is FULL of parks, and we had not made it to this one yet. The girls were SO excited when we got there; even though they were upset that we weren’t taking them to their “favorite” park.

There was a man sitting on a bench making balloon animals for the kids. I have no idea how long he had been there, but it had to have been a long time. So many kids had balloons. Addi waited so patiently and got a pink unicorn that she carried around all evening. She is still dancing around with it today. Chloe wouldn’t wait in line long enough, so she missed out.

The park was right net to a beautiful neighborhood full of trees, so Scott made my heart happy by driving through. I love looking out houses. I always have. My interior design classes were by far my favorite classes that I have ever taken.

Moving on…

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This week promises to be busy. Harper’s glasses will be ready soon, and we’ll be driving down to get those. She starts speech therapy tomorrow morning, and they will do another tympanogram on her. On Friday, Harper and Addi have back to back appointments at the ENT. Harper will get more hearing tests done, and Addison will be having  her consultation for the procedure that she needs to have done. We could end up having two surgeries to schedule that day.

For those of you who have been through surgeries with your children, I’d love to hear your tips. Harper will most likely have surgery to put tubes in (that is still not a guarantee). Addi will most likely be put under to have her procedure done. Both are minor, but both will be uncomfortable after. Addison is really sensitive, and I worry about her the most. She’ll have stitches right on her hairline near her ear. I don’t want to see either of them in pain. I would love to hear your advice, and would absolutely love your prayers.