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Neuro News

I finally got to see my neurologist yesterday. That is the one appointment that I have been the most anxious for. That is what all of this has been about.

Basically, it was just an appointment to make sure that I was handling the medicine alright, but I was able to have some questions answered. Every time he would answer a question, he would say “People with epilepsy…” and then answer. I stupidly did not ask if he was diagnosing me with epilepsy or just using it as a reference. So, I will be calling on Monday because I know that my OB will want to know as well.

If anyone who reads this is around me and I have a seizure, you are supposed to call 9-1-1 while I am pregnant. Even if it is super short. Once I am no longer pregnant it is not necessary unless if it lasts 5 minutes. Then, it is considered an emergency and I would need to get to the hospital ASAP. Otherwise, as long as I don’t hurt myself in a fall, just let me go and make sure that I don’t hurt myself or anyone else during it.

It was confirmed that the “dizzy spells” that I had previously described are in fact partial seizures. It feels so good to finally have an answer and know what they are. I was tired of feeling like I was just crazy because no doctor had ever been able to figure it out. They would test my heart and find nothing, and then just drop it because they had no idea what else it could be. I guess that my description was off, because I never knew HOW to describe it. They were just weird and scary.

I also found out why the nurses always act like my “condition” is such a big deal. I never thought it was a huge deal to have seizures.. obviously it is a bigger deal during pregnancy. I just thought it wasn’t anything to worry greatly over. I found out that even a short seizure can case contractions to start in pregnancy. They can also deprive your baby of oxygen and greatly increase your risk of miscarriage and stillbirth. So, big deal. I am 100% in God’s hands, and since going on the medication I have not even had a partial seizure like I had been constantly having before. I am so thankful for the Lord’s protection. I am so thankful for His perfect timing.

Please continue to pray for us as we have some decisions to make that are difficult. I also still have continuous doctor’s appointments through the rest of the pregnancy and my husband has a lot going on. He is getting ordained next Saturday and I am SO PROUD of him and his willingness to follow the Lord and lead his family. His mom is in town to help out so that he can focus on that and not have to worry about the girls or taking me back and forth to the hospital.

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Irritable..

Yesterday, I spent FOUR HOURS at home having contractions every 10 minutes. I ignored it for a while.. chugged 30 ounces of water and laid on the couch.. and still.. every 10 minutes.. Waited twice as long as they told me to before heading into the hospital. They were painless other than the fact that she is sitting really low, so having Braxton hicks pushes her downward.. which is just not comfortable for anyone.

Now, it was a Wednesday night, which means that my youth pastor husband had a lot on his plate. Throw his psychotic pregnant wife that can’t drive on his plate and just knock it all over the place. As soon as they hook me up to all of the monitors, NOTHING!!

Don’t get me wrong, I don’t want a preemie, and I am thankful that it stopped. There were no signs of labor. They tested for some infections because they said that could be the cause of the “false labor” that I just put up with. They said that my uterus was just “irritable” because it was contracting over and over again.. just nothing big enough to be a concern.

As soon as they send me home and I start walking to the car with Scott, guess what starts again?! Obviously, I didn’t need to go back to L&D, because nothing was happening or wrong, but it was just plain annoying.

This morning at 6:55 AM I get a call.. that I ignored.. and a message saying “We have some test results to share with you, and need a pharmacy number to call in a prescription.” So, I am thankful that I went in and looked like an idiot, because they wouldn’t have found the infection otherwise.. but I think I am just as irritable as my crazy uterus.

Someone get my husband some oreos. He deserves them..

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33 weeks pregnant

How far along? 33 weeks

Baby’s size: the size of a baby? Oh, 4 pounds or so probably..

Maternity clothes? I am 8 months pregnant.. duh

Sleep: Last night was the worst night of sleep in a LONG time. My back is uncomfortable and my knee is hurting, so it’s a struggle to fall asleep and stay that way.

Worst moment this week: Thursday evening I decided to take an express flight down the stairs that felt like slow motion. The baby was moving just fine, so I knew she was OK. I hurt my knee, bruised my side, and sliced the tip of my finger opened.

Best moment this week: Yesterday I got to lay down during my non-stress test. It took twice as long as it’s supposed to because she wasn’t doing what she was supposed to (they look for a certain acceleration in her heart rate when she moves, and it wasn’t accelerating enough). I got to lay for an hour with nothing but the sound of her heart beat and occasionally talking to the awesome nurse that I had when I was discharged from the hospital!

Miss anything? driving.. be able to go to the store when I NEED to.. I didn’t even get to buy my mom a birthday card yet and her birthday is TOMORROW.

Movement: lots!!

Food cravings: I have been skipping a lot of meals because I just don’t want anything..

Anything making you queasy or sick: not eating makes me sick..

Gender: GIRL

Labor signs: the usual

Belly button in or out? out.. Addi asked me what it was a couple of days ago.

Wedding rings on or off? on still

Happy or moody most of the time: really moody. I am tired of the girls fighting constantly and being stuck at the house.. at least it is getting really clean.

Looking forward to: my due date.. 7 weeks to go!

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Nursery: During

Here is our now-beautiful nursery AND bathroom!! The bathroom was a total surprise to me, and it is beautiful!!! A huge thank you to everyone who worked so hard to get it all done. There were two men who put (literally) their blood and sweat into this room. My mother-in-law is a rockstar and came up to help us out after all of my drama. She painted a lot of the rooms, the doors, and did a ton of touch up work. She also helped to clean the entire “outer portion” of the basement when a pipe burst just an hour after the men finished these rooms. She also put up with our freezing house, as our furnace went out during an obnoxiously cold week of May.

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32 weeks pregnant

How far along? 32 weeks

Baby’s size: the size of a baby? lol Not sure..

Maternity clothes? Yes

Sleep: My sleep is starting to go back to the crummy way it was before.. nooooooooo

Worst moment this week: Yesterday.. My girls fought all morning long for whatever reason. Addison refused to nap and painted with her POOP!! Not once, but TWICE!!!!!

Best moment this week: I am alive and still pregnant with a baby that moves like crazy.

Miss anything? Driving.. being treated like a real person.

Movement: oodles of movement

Food cravings: A cake batter blizzard in a waffle cone. Thank you husband..

Anything making you queasy or sick: heartburn still

Gender: GIRL

Labor signs: I am still having lots of Braxton hicks.. especially the more I walk.

Belly button in or out? still mostly out

Wedding rings on or off? They are on right now, but my hands are really swelling so I am afraid that won’t last much longer.

Happy or moody most of the time: I feel crazy.. just really emotional. (still!)

Looking forward to: November when I can drive.. lol! Seriously though.. just looking forward to a healthy delivery and finding out more about my “condition”. It’s been scary, difficult, and so many other words that I can’t even find. I never imagined that I would be in this kind of situation. I am so blessed in the midst of it, but I think that I have finally learned that I am not invincible.

The room is done and coming together so nicely. I am going to do before/during/after posts. It is amazing what these wonderful men accomplished in our home. I love it!

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Appointments everywhere

I had my first OB visit yesterday since getting out of the hospital. It was at my new high-risk clinic. Everything is new. I found out that I have to go twice a week until I deliver for Non-Stress Tests to monitor the baby. Every Monday and Thursday I will be hooked up to monitors and get to listen to the swish swish of her little heart beating (or the sound of her hiccups!). I will be seeing the OB every Wednesday until July when their schedules will change. Either way, it is once a week from here on out. I also will be seeing my neurologist in two weeks. I am going to be set up with a cardiologist to look into the hole in my heart further. I also have to go to Maternal Fetal Medicine just to check everything out and make sure that there is nothing being missed.

That said, I am so grateful for the man I have beside me for this ride. Scott has been such a source of strength and comfort through this all. He has to drive me everywhere now.. If you can’t do math that is at least 3, a lot of weeks 4, appointments EVERY SINGLE WEEK. He has a job. He works.. Thankfully, he is a youth pastor and works under a great man who is very flexible, but he still has to get his work done. I have broken down into tears countless times already. I don’t know how he isn’t losing his mind putting up with me.

I had to do a “24 hour urine”.. which just is really glamorous.. while in the hospital. Apparently my protein level was elevated, so I am repeating that all day today. Tomorrow I get to go for a blood draw and to turn in my really pretty jugs of.. well, urine.. They gave me cups to stick in my purse in case I have to go anywhere today and need to use the restroom. Uh… I think they need a super sized cup for a pregnant woman who is forcing herself to drink 10 glasses of water/tea a day.. No more dehydration for me!! I learned my lesson.

it is still scary to not know what caused the seizure. I know that God is in control. He wasn’t surprised by me collapsing and squashing poor Addison. None of this is a surprise to Him, so I am TRYING to rest in that. I fear it happening again with no one around. I am planning to teach Chloe how to dial Scott on my cell phone in case if it happens again. Both girls know that I “passded” out, so they will know what I am talking about. I would rather teach them to dial Scott than to dial 9-1-1 in case if I were to fall asleep (this medicine.. it’s killer) or something. I don’t want them to panic Scott, but I have to do something to make sure that they are safe, and the baby is safe. I don’t care at all about me other than that I am housing and supposed to be protecting my unborn child. The girls have handled it all very well, and I am so grateful that they have not been scarred for life by all of this.

This is very personal, but I really would like the extra prayers for us. Because of the severity of all of this, we are really praying about whether or not we need have our three babies on earth, and no more. I have never EVER wanted to make a permanent decision at my age, because I am still so young and my passion for motherhood is intense. I always have wanted a larger family. We have always said we want four kids. Now, I do have four kids, because I have a sweet baby in heaven, but I have wanted four here on earth with me. I am aware that any other pregnancy will be considered high risk as well. Each pregnancy has been more and more difficult on me, and this one obviously has been the hardest. Please pray that Scott and I can have wisdom and make the decision that God wants for us. I don’t want to make it out of fear, but I have to be realistic. This situation could be so much worse, but it is bad. I can’t pretend that it is really “not that bad”, because it is bad. The baby was safe this time, but if it happens again, she could be hurt. If I end up having pre-eclampsia or eclampsia, I will have a baby much earlier than expected. She will have a long journey ahead of her. Thankfully we are at the point where she wouldn’t require a ton of extra medical attention, but really any NICU stay is a scary one.

Please just keep praying for all of this. Pray that I can have patience with it all as I am feeling very frustrated and useless. No one will let me do anything now, and it is frustrating to me. Pray that Scott continues to have patience with me, as I feel like a crazy pregnant woman crying all of the time. Pray that our parents can all have peace, as they are all worried about all of this. Pray that they have safety as they travel back and forth to help out as much as they can. Pray and thank the Lord for these amazing people in my life…. I am just so overwhelmed by the love and support that I have all around me. I am so blessed even in a scary time!

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31 weeks pregnant

How far along? 31 weeks.. I have to say that I am so thankful to reach this point. There was talk of eclampsia, which ends in a c-section.. I was so afraid..

Baby’s size: according to the ultrasound she is 3 pounds 8 ounces

Maternity clothes? Yes

Sleep: My anti-seizure meds are making me sleep like a rock.

Worst moment this week: That would definitely be having a seizure, spending 3 days in a hospital, and having every major test done… I keep breaking down into tears because I feel guilty that Scott has to drive me all over the place. I have several doctor’s appointments, and he has to take me. He has to go to the grocery store with me.. everywhere.. I feel like such an inconvenience. (He keeps telling me to stop apologizing and not to worry.. that we will make it work.. just so no one thinks he is being mean about it.)

Best moment this week: Being just fine after all of the bad that happened.

Miss anything? I am already going crazy just knowing that I can’t drive anywhere.. Seriously.. 6 MONTHS.. November is a long time away…

Movement: loads and loads of movements.. thank you, Jesus!

Food cravings: ice cream. 🙂

Anything making you queasy or sick: heartburn.. as usual…

Gender: GIRL

Labor signs: I am still having lots of Braxton hicks

Belly button in or out? still mostly out

Wedding rings on or off? on

Happy or moody most of the time: I feel crazy.. just really emotional.

Looking forward to: Decorating the nursery. The room should be done this week!!!

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Blessings..

I just can’t stop thinking about how blessed I am. I am an emotional person as it is, but then throw in crazy pregnancy hormones, and crazy events, and I am a mess.

My husband kept his cool and knew exactly what to do when I had a freak seizure. My parents left work and went home and packed their bags so that they could come if needed. As soon as they found out I would be admitted, they drove ALL night and showed up at the hospital. (I was feeling really lonely. Scott had to leave to take care of the girls, and I cried when he left the hospital.) They stayed the entire night with me. If I had not been put on the labor and delivery floor, they would not have been able to come that night. My mom dozed off for a very short while, and my dad got a slightly longer nap in, but not at the same time. As soon as they knew that Scott was up with the girls, they left the hospital to trade places with him. After getting practically no sleep all night, they spent the entire day taking care of Chloe and Addison. They let Scott stay at the hospital with me all day, and even came back to visit me before going to their hotel to finally go to bed.

My mom went to the store and bought some food for us (Friday was supposed to be our grocery day, so our freezer was pretty bare.) I came home to pictures hung all over the house and other decorations for my birthday. There was a huge bouquet of flowers on the table with a happy birthday balloon.

My mother-in-law is heading out this way tomorrow. She is going to stay for at least the whole week. She is going to go to the mother/daughter banquet on Saturday with me.

I just don’t know what I did to deserve such blessings. Yes, it is a crummy situation.. I can’t drive until the middle of November, I have a hole in my heart, and I have to take two horse pills twice a day to prevent another seizure from happening. It all could have been so much worse though. I am just so grateful.. my heart is full and overwhelmed by how good God is.

I appreciate all of the prayers for me, but also pray for special blessings to be poured out on all of the people who have shown such selflessness and kindness through all of this.

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I am high risk..

I don’t fully know how to digest what has happened over the past couple of days. I will start by saying that the baby is fine, and I am ultimately fine. Thursday afternoon I was outside playing with the girls. I always get these weird dizzy spells. I can feel them coming on, know to just breathe, and they pass without me ever fainting, losing consciousness, or even falling down. I just stand, sit, whatever I am doing.. and deal.. Well, evidently this time I should have sat down. Scott happened to be at our house mowing the lawn because it was finally a sunny day that dried up some of the moisture. I had been standing next to the Little Tykes slide and was holding on because I knew I was dizzy. Scott said he noticed me leaning on it and thought I was pushing it towards Addi to tease her. Then, he thought, “Is she really just going to push that all of the way over onto Addi?!” I did, causing Addi to cry because she was mad. He said that I kind of slid down the side of this slide (no, not the slide itself.. the SIDE OF IT) and then started convulsing. He ran over to me and laid me on my side. I stopped convulsing and apparently my eyes were rolled back into my head and I was sort of struggling to breathe. He called 9-1-1.

The next thing I kind of remember is a man next to me saying something about if I knew where I was. I kept nodding, I think, but I couldn’t actually answer where I was or any of his questions. I only remember little snippets. I somehow ended up on a stretcher and saw Pastor’s son in between our houses playing with my daughters. I saw Pastor walking towards the house. I remember telling Scott to call my parents and tell them. (Tell them what, Ashley?!) The next thing I remember is a rubber band being tied around my arm. I thought he was trying to draw blood so I told him that they have to go through my hand usually. I was wrong, he was starting an IV, and did it through my hand. I had a heart monitor on, which I don’t know how that happened. Suddenly it dawned on me that I was leaving my kids behind and had no idea who was taking care of them, or what had happened. I said “ARE MY KIDS OK?!” He said, “Yes, they are fine. They are beautiful.” Smart fella. 😉 I don’t remember much other than being told I would probably end up at some hospital with a great NICU area. Now that I am processing, that is scary to hear!! The next thing I remember is someone telling me that they had to take off my bra and a couple of other people holding a gown in front of me. I have no idea how my shirts got off… I faintly remember climbing from the stretcher to the bed. Scott finally showed up and kinda told me what happened. There was so much commotion. I started feeling the baby move like crazy and knew she must be ok. They were trying to tell me what all was going to happen, and that I was going to be admitted to the hospital.

A long ER wait, and I finally get into a room around 9 PM or so. I was told that I was on bed rest for my hospital stay. I had a magnificent nurse. My IV was hurting my hand so bad that I actually asked her if she could move it. If you know me at all, that is HUGE. Apparently they used a HUGE needle on the ambulance. gross…. anyway… My parents had pretty much gone home and packed as soon as Scott called, so they showed up sometime late at night. They stayed up all night with me. Well, my mom did. My dad dozed off in the chair for an hour or so. Mom finally dozed off in the morning for a VERY short time.. which was when they came at 4:30 AM to take me on my second ambulance ride. They don’t do the MRI in the hospital, they drive you via ambulance across the parking lot to get it done. The guys get me on the stretcher and one of them says “now its time for the party” I kinda laugh and then am rocket launched into the air.. or at least it felt that way. They picked me up so fast and high it was crazy. I go inside a tiny, loud tube and my left leg twitches the WHOLE TIME. So much for staying still… When I get out a different EMT team shows up to take me back. Ironically it was the same guy who brought me to the hospital. Apparently I was his last stop of the last shift, and the first stop of his current shift. He was so nice and I told him I was much more with it this time. He said “ahh.. you weren’t that bad..” ha! Right.. I know who I am this time. 😉

I get back to my room and my dad asks the EMT some questions about what happens. He answers and goes on his merry way. More doctors filter in and out. Around 7:30 my parents left so that Scott could come sit with me. He showed up as they were starting my EEG. They asked him to wait outside, so he went and ate breakfast. I text him when they were done. He kisses me (I love that man) and pulls a chair right next to me. He goes “What did you do all night” (I only got a 45 minute nap) and more doctors walk in. I said “this!”. I don’t remember which group it was… I don’t remember a whole lot of Friday. It was a LOT of tests and doctors offering theories. Scott left to relieve my parents, and they come back to sit with me for a little while. They left around 10 or 10:30. At around 11 the neurologist finally comes in. He says he is going to start me on an anti-seizure medication just to be safe, and that I am not allowed to drive for at least 6 months. After I get my medicine and some TUMS, I finally am able to go to sleep a little before midnight… but wishing I could have gone home. They had finally unhooked me from most of the machines. I had been hooked up to compression things on my legs to prevent blood clots, my heart monitor, pulse ox monitor, the monitors for the baby, and my IV. I was unhooked from all buy my heart monitor. I didn’t want to wait for a nurse to come around 3 when I woke up, so I walked to the bathroom alone. (WOW, THE FREEDOM!). I went back to sleep and slept until around 6. I meet my new (AWESOME) nurse. Someone had brought my breakfast to me, so she said she would let me eat and then hook me back up to the monitors for the baby. A doctor comes in and tells me that she really thinks that it was just dehydration (I was SEVERELY dehydrated when they got me.. I had to get electrolytes and potassium along with the IV fluids). She opens my Echo results and tells me that I have a hole in my heart. It is completely unrelated to the seizures, or so-called seizures, but I may need it to be patched because it is a stroke risk. hooray. Then, she finds the EEG results and finds out that I did in fact have a seizure.

The neurologist came in a while later and tells me that he is going to up my dose of medicine since it was a seizure. I also have to follow up with him in 4 weeks, and that I MUST NOT DRIVE for AT LEAST 6 months). Then, an actual OB doctor comes in. He says that I am now going to have to see their high risk clinic. Happy Birthday, here is some terrifying and annoying news.

To recap: I had a seizure, rode in an ambulance, HAVE TO DRINK MORE, have a hole in my heart, am a high-risk pregnancy patient, and have to make a hundred doctors appointments that I cannot drive to… and.. GOD IS GOOD!!

He protected me from so much. If I hadn’t been by that slide, I would have fallen hard and hurt myself and/or the baby. If Scott hadn’t seen I would have just laid there unconscious without anyone around but the girls (who could have run off and ended up hurt). The baby is fine. I should be just fine.. I am fine.. I got to visit with my parents, even though the circumstances aren’t good, I love to see them.

If I think of more, I will try to update or fix this. I know that family and friends want to know what happened, and I am still trying to piece it all together.